European Conference on Rare Diseases & Orphan Products (ECRD)

Thursday, May 26

Karen Aiach and Samantha Parker from Lysogene presented their experience and views concerning “Patients as Game Changers- beyond regulatory, where are patients leading the way in development and availability of treatment” and “European reference networks: The game changer in healthcare?” at the European Conference on Rare Diseases & Orphan Products (ECRD)

About the ECRD

This biennial conference is a unique opportunity to come together and exchange: it is the event at which to connect and share with all other members of the rare disease community http://www.rare-diseases.eu/.